Brain Tumour Thursday Radio – Emma York tells us her story

Summer is definitely here finally in the UK. Here is the PODCAST if you missed the show on Thursday. We had an interview with Emma Young. Emma was diagnosed in June 2012 with a brain tumour, a meningioma and has had two brain surgeries and radiotherapy. She tells us about her diagnosis and where she is now with her treatment.

We talked about all the events and things where you can take part within the brain tumour community.

Brainstrust have a meetup in ‪Croydon on Tuesday 30th June where you can meet other people affected by a brain tumour. It will be held at the Pizza Express, George Street.
Find more details herewww.meetup.com/brainstrust/events

 

Brain Tumour Support

We told you about the Brain Tumour Research event being held by LoveUKeira – On the Monday 10th August the Love U Keira Tractor Road Trip team will set off on their epic 700 mile journey, raising awareness and funding for childhood brain tumours. There will be multiple events taking place en route at the many overnight stops. http://www.loveukeira.co.uk/#!tractorroadtrip/c1ct2

 

Also Brain Tumour Research are holding a Summer Party fundraiser with Santander on Friday, 25th September on ‎Plymouth Hoe. Tickets available through Crowdfunder on www.crowdfunder.co.uk/brain_tumour_research_summer_party.
Or see www.braintumourresearch.org

 

The Twilight Walks are back. Get involved in a 10k walk at dusk to raise much needed fund for the charities. You can go as slow or fast as you like. The money will be going to The Brain Tumour Charity and BTRS. http://www.thebraintumourcharity.org/raising-funds/Events/the-twilight-walk-2015

Here are the date:

Sunday, 20th September in ‪Windsor
Sunday, 27th September in ‎Chester
Sunday, 4th October in ‪York 
Sunday, 11th October in ‪Warwick
 

We told you about the Brain Tumour Research & Support across Yorkshire Masquerade Ball on Friday 9th October at The Cedar Court Hotel, Bradford, which will be transformed into a Venetian Palace. Details on www.btrs.org.uk

 

We mentioned upcoming events with The National Brain Appeal – A letter in mind – The Art of a Journey are looking for artists whether established, up and coming or you love being creative. The idea being to create a work of art using a C5 envelope and then in October there will be an exhibition of the works at the London Space Gallery, OXO Tower in London, and the creations will be sold anonymously for £80 (the artist’s identity and biography will only be revealed once the exhibition has ended and the work is sold. Details and inspiration on www.nationalbrainappeal.org

 

We also told you about McCullom Lake Documentary : A town battles brain cancer. This is a Kickstarter project by McCullom Lake Films, LLC and is a feature length documentary tell the story of the impact of a‪#‎braincancer cluster in a suburb of ‪#‎Chicago. More than 30 residents of this small community have been diagnosed with extremely rare brain tumours, brain cancer and other serious medical conditions. The documentary chronicles the town’s search for answers and a journalist’s search for the truth. www.kickstarter.com and click on ‘search projects’ and type in McCollum Lake

 

If you want to hear more, got to the PODCAST

 Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

 

Brain Tumour Thursday Radio – Be Inspired and Encouraged by Danielle McGriskin

I can’t believe it is already Summer Time. Listen again on the PODCAST for all the Brain Tumour Thursday Shows this year. You can listen to interviews from people affected by a brain tumour and info about the brain tumour charities. You can download the podcast so you can listen at any time. You can also get to the best bits (like the interviews) and you don’t have to listen to us waffle on. 

Listen again to our interview with the inspiration Danielle McGriskin Here http://t.co/KJN7XHCbyK 

Danielle was diagnosed with a brain tumour and hydrocephalus when she was just 13yrs old. Now at the age of 18 she talks to us at Croydon Radio about living with an illness and how she finds it helpful helping others. She has been raising funds for The Brain Tumour Charity for many years and is an ambassador for them. She was also given The Diana Award for the Courageous Citizen Award in 2013.

You can find her on:

Twitter: @daniellemcgfund

Facebook: The Brain Tumour Charity – Danielle McGriskin Fund

Or on: www.daniellemcgriskin.blogspot.co.uk  www.thedaniellemcgriskinfund.bigcartel.com

 

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Two family men who have been juggling life with a brain tumour

Listen to, Simon Davies and Adam Blain interviews on Croydon Radio Here http://t.co/YEL03oq2WF   

Two family men who have been juggling life with a brain tumour.  Simon talks about his experience of having 4 operations and the trials he has gone through. He found very little in the way of support after his diognosis and treatment but has a great family keeping him going.

Adam Blain 44-year-old London lawyer and father of three talks about his new book ‘Pear Shaped’. Adam was diagnosed with a rare and aggressive brain tumour. He has gone through radiotherapy and chemotherapy which were preceded by major brain surgery to remove the tumour. Using his humour, his book charts Adam’s journey.

You can find the book on amazon http://www.amazon.co.uk/Pear-Shaped-Funniest-About-Cancer-ebook/dp/B00UNMY59C

Listen to all the details on the podcast here:  http://t.co/YEL03oq2WF   

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

 

Brain Tumour Thursday Radio – Interviewing Ryan Shaw about the Yukon Arctic Challenge

Over the month of December on Croydon Radio, we had a magical time building up to the Christmas holidays. We played some of the Christmas favourites and danced away in the studio. However we never forget the reason we are on the radio every Thursday to encouragement people who are affected by a brain tumour and give people a voice. We had a wonderful interview with Ryan Shaw. Ryan is raising funds for Brain Tumour Research. He told us about the Yukon Arctic Challenge he is undertaking in February 2015.

Listen to Ryan Shaw’s interview here – http://t.co/EQYbJuYdZ8

Find him on FB https://www.facebook.com/yau2015
and his page all about his preparations and the experiences he goes through here: http://ryanshaw72.wordpress.com/

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

 

 

Brain Tumour Thursday Radio – Learning about Soul Nutrition and Astro Brain Tumour Fund

Over the month of October on Croydon Radio, we had a new Brain Tumour Charity of the Month – Astro Fund. As always we kept our eyes on the TWEETS for #BrainTumorThursday in the aim of raising awareness of brain tumours.

You can listen again on the podcast for all the shows you missed. Definitely listen in on the interview with Katie Sheen founder of Soul Nutrition and Astro Brain Tumour Fund.

Katie’s personal story & how her experience of brain tumours has inspired the interactive Soul Nutrition website. Katie talked about the news of the groundbreaking ketogenic dietary therapy research funded by Soul Nutrition, Astro Brain Tumour Fund and Matthew’s Friends and also about Butterfly moments: how to find the happiness in every day.

2nd October – Listen Again Here

9th October – Listen Again Here

16th October – Listen Again Here

23rd October – Listen Again Here

30th October – Listen Again Here

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Interviewing BTRS

Over the month of September on Croydon Radio, we had a number of inspirational interviews. As always we kept our eyes on the TWEETS for #BrainTumorThursday also and raising awareness of brain tumours. Listen again to the interviews below.

Aunty M Brain Tumours Charity of the Month was BTRS. Their vision is clear and simple – “we want to cure a devastating disease that affects so many people.  Whist we are waiting for the cure, we will provide the best patient and family support network we can”.

BTRS set its objectives as follows:

  • To raise funds to support specific and dedicated research projects into the treatment and cure of child and adult brain tumours, and to ensure that all research is written up for publication and communicated with other charities and research organisations.
  • To provide grants or financial assistance to brain tumour patients and their carers.
  • To provide equipment and apparatus to hospital wards, patients or research centres.

Interviews with the charity members

Thu 04 September – Interview with Charity Manager, Rachel Wilson about the origins of the charity and what their plans are for the future. Listen again on the PODCAST

Thu 11 September – Interview with Sam Wilson the BTRS Patient Support Co-ordinator. She talked about her personal experiences from brain tumours and what her role intails. PODCAST

Thu 18 September – Interview with Karl Martin and hearing about his brain tumour story. It is very heart warming and honest.  PODCAST

Thu 25 September – Interview with Sorrell Coulson who is the events and fundraising manager from BTRS. Sorrell talked about all the upcoming events this year and how people can take part. PODCAST

Contact:

BTRS Office,
Suite 21,
The Tannery,
Kirkstall Road,
Leeds,
LS3 1HS

Rachel Wilson
Charity Manager.
Email: rachel@btrs.org.uk

Sorrell Coulson
Fundraising and Events Manager
Email: sorrell@btrs.org.uk

Sam Wilson
Patient Support Co-ordinator
Email: sam@btrs.org.uk 

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below.

Brain Tumour Thursday Radio – The National Brain Appeal

Over the month of July on Croydon Radio, we had a number of inspirational interviews. As always we kept our eyes on the TWEETS for #BrainTumorThursday also and raising awareness of brain tumours. Listen again to the interviews below.

Aunty M Brain Tumours Charity of the Month in July was:  The National Brain Appeal and we found out all the things they do and are doing in the future. Listen on the podcast. Also we found out about a new support group in Croydon The Lake Foundation’s African and African-Caribbean Cancer Support Group. Listen again below..

TheresaÔÇôblogpost3rd July 2014 PODCAST: We had an interview with Chris Smith who is fighting brain cancer. He tells us how he deals with the up’s and down’s of this terrible disease and how he will continue to fight in the hope of watching his daughter grow up. http://t.co/urrhMyCbpl44-R-joss-fleming-2-W1200

11th July 2014 PODCAST: We had an interview with Chief Executive Theresa Dauncey from The National Brain Appeal and learnt all about the charity and what they do and why they were set up. http://t.co/gROiOw4Sce

17th July 2014 PODCAST: We had a wonderful and inspirational interview with brain tumour survivor Joss Fleming who raises money for the National Brain Appeal after they saved her life from a brain tumour. Since her life saving surgery with the National Hospital Joss climbed 5985m up 44-R-joss-fleming-1-W1200Kilimanjaro in June 2012 and raised an amazing £3,800 – http://goo.gl/WcVwRa

image24th July 2014 PODCAST: In July we also had an inspiring interview with a much needed support network set up by Abi Begho. Abi set The Lake Foundation’s African and African-Caribbean Cancer Support Group talking about their aims to provide anyone touched by cancer with the support and information that they need to cope with the effects of this disease. Find out more about them at http://www.thelakefoundation.com/ – here the interview here http://goo.gl/VjDdxv

31st July 2014 PODCAST: http://t.co/aZy9snF2km we talked about stressful times and you can find the articles we read out here http://www.mind.org.uk/information-support/tips-for-everyday-living/stress-guide/#.U99aiPldWSo:

More about the The National Brain Appeal – is the charity dedicated to raising much needed funds for The National Hospital for Neurology and Neurosurgery in Queen Square London.- http://www.nationalbrainappeal.org/

We had some great interviews with people working for or supporting the The National. The charity is one of the world’s leading centres for the diagnosis, treatment and care of patients with a wide range of neurological and neuromuscular conditions including multiple sclerosis (MS), brain cancer, epilepsy, Parkinson’s disease, stroke, Prion disease, and head injury. Please help us to improve their outcomes.

The National Brain Appeal (formerly known as The National Hospital Development Foundation) is the charity dedicated to raising vital fundindexs for The National Hospital for Neurology and Neurosurgery, Queen Square, London. Since the charity began in 1984 we have raised £40 million for state-of-the-art equipment, major building programmes and research.

One event the National Brain Appeal is holding is a call for artists, designers and illustrators!

As part of their 30th anniversary celebrations we are planning an exciting exhibition called ‘A Letter in Mind’ which will be held at the prestigious central London exhibition space gallery@oxo in October 2014. For more information see: http://www.nationalbrainappeal.org/a-letter-in-mind/

 

You can find out more about this incredible hospital by clicking here.

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below.