Brain Tumour Thursday Radio – Super Josh and his Super Powers

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This month on Croydon Radio  we had a new charity of the month. The Joshua Wilson Brain Tumour Charity: http://www.joshwilson.org.uk/ We also looked at the #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)   Join us every Thursday raising awareness. Every Thursday people from around the world wanting to raise awareness of brain tumours come together on Twitter and tweet brain Tumour facts/statistics and stories all day long in the hope that we reach as many people as possible who might not normally hear anything about brain tumours. All you have to do is put #BrainTumorThursday in your tweets/posts.

Do you know about Super Josh yet and The Joshua Wilson Brain Tumour Charity:http://www.joshwilson.org.uk/?

Super Josh“Joshua Wilson aka SuperJosh was a very happy normal 3 and a half year old when he was diagnosed with his tumour; lifesaving brain surgery left Joshua in a coma for 3 months before he then started his recovery in rehab – the complicated surgery due to the location of the brain stem left him with complex physical needs, epilepsy, scoliosis, joint problems and an acquired brain injury” – Joshua’s Mother

Why Donate to the Charity? Your support and donations will help Josh’s Charity improve the lives of children with brain tumours & post surgery disabilities, through financial solutions for specialist equipment, house adaptations and advice.

Super JoshFind them on Twitter: @JourneyJoshuas or @superjcharity

Contact: SuperJosh Charity, PO Box 648, Bury, BL8 9QF



Listen again on the PODCASTS

5th June 2014 PODCAST: http://t.co/fbFnD28KgV
We were looking at 29 Ways to Come Alive, and Not Just Exist – suggestions and reminders that can help you to stop going through the motions. To disconnect the autopilot and to come alive again. http://www.positivityblog.com/index.php/2014/05/15/come-alive-not-just-exist/

 

12th June 2014 Podcast: http://t.co/eCcNqzJPx1

We talked about Avoiding infection when you have reduced immunity – This information is for people who have reduced immunity because of the effects of cancer or its treatment. It explains how to avoid infection when your immunity is low. – Cancer Research – http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/AvoidingInfection.aspx

19th June 2014 PODCAST: http://t.co/eWjK1RuMKZ
We talked about ‘What Things Make People Smile’. – http://tinybuddha.com/blog/51-things-that-will-make-you-smile/ 51 Things That Will Make You Smile – By Lori Deschene

26th June 2014 Podcast – http://t.co/CQ4FbuSsI6
We are looking at ‘Happiness May Be Just a Tight Squeeze Away: The Link Between Mood and Touch’

How Your Brain Reacts to Touch – “A number of studies show that when people touch you, your brain produces oxytocin,” says Paul Zak, PhD, director of the Center for Neuroeconomics Studies at Claremont Graduate University and a self-proclaimed “hugger”. Oxytocin is that powerful brain chemical associated with bonding and relationships, characteristics that that have earned it nicknames including “the love hormone”, “the trust hormone”, and “the happy hormone” –- http://authenticqi.com/2014/06/why-you-need-a-hug/

 

Find like minded people on my Facebook page and Twitter Page.Claire Bullimore

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio –Words of Wisdom: New Diagnosis

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This Month on Croydon Radio we looked at the #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

We had interviews with Aunty M Brain Tumours charity of the Month Friends Of O.S.C.A.R and we had guest Shona Krelle who told us all about her mobile wig service Prestige Wigs. Shona is a sponsor of Cancer Relief UK and covers Surrey/Hampshire and South East.

We talked about: Arrogance’ of ignoring need for sleep. Find out more here: also http://www.bbc.co.uk/news/health-27286872

also

Words of Wisdom: New Diagnosis: What words of wisdom would you offer to a newly diagnosed patient or family? See more at: http://www.braintumour.ca/3198/words-of-wisdom-new-diagnosis#sthash.kZSdT62K.dpuf

Brain Tumour Support8th May 2014 PODCAST: http://t.co/GikvmZ3Dpy
Talking about the work Friends of O.S.C.A.R are doing and letters families sent about how they feel about the charity and how they help then.

15th May 2014 PODCAST: http://t.co/5S3YuZqb1Q Elton Riches from Friends Of O.S.C.A.R came in the studio and talked about the charity and their plans for the future. They are a wonderful charity that is set up to support families that have children with brain and spinal tumours throughout the country. Find out more about them at http://www.friendsofoscar.org.uk/

The charity runs, only because of the families donations that help the charity do such great work. They support families with children who have or had a brain tumour and give them all support during and after treatment. Brain Tumour Support

22nd May 2014 PODCAST:http://t.co/b5DBlcJx44We had a great interview with Shona Krelle who is the owner and founder of Prestige Wigs: Shona talked about her mobile wig service.. “I am very passionate about my mobile wig service, and go all over the South” – Find Shona on Twitter: @PRESTIGEWIGS or at www.prestigewigs.co.uk

29th May 2014 PODCAST: http://goo.gl/3fUkFM We talked about: what words of wisdom would you offer to a newly diagnosed patient or family?

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Where is Your Money Being Spent?

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This week on Croydon Radiowe had an interview curtsey of our Aunty M Brain Tumours charity of the Month Brain Tumour Research. We spoke to two world-class neuro-oncologists, Professor Geoff Pilkington, lead scientist at our Research Centre of Excellence in the University of Portsmouth and Professor Helen Fillmore, the Principal Research Fellow at the lab.

Listen again on the PODCAST We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

Brain Tumour ResearchCroydon Radio continue their sterling work in promoting us as their charity of the month with a must-listen interview with two world-class neuro-oncologists, Professor Geoff Pilkington, lead scientist at our Research Centre of Excellence in the University of Portsmouth and Professor Helen Fillmore, the Principal Research Fellow at the lab.

We thoroughly recommend a listen if you would like to learn EXACTLY how the funds being raised every day are being used at this Centre.

Having dedicated his entire career to brain tumour research, Geoff is now the President of the British Neuro-oncology Society and a leading international authority in the field. In this comprehensive interview he covers everything you need to know; from his own personal beginnings to the fresh new research beginnings, coming about as a result of our dedication to sustainable funding i.e. our 3 new Centres of Excellence. As a leading US brain tumour specialist, Helen Fillmore also offers her thoughts on why the team works so well together, citing their combined experience and shared passion for moving things forward as key to this.

We are incredibly proud to support Geoff, Helen and their team, and believe that together with our incredible #FightingForce of fundraisers, we can make tangible and consistent progress towards finding a cure.” Brain Tumour Research

 

Listen again on the PODCAST

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Interview with Brain Tumour Cancer Survivor David Grant

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This week on Croydon Radio  we had an interview with David Grant. We talked about the charity Brain Tumour Research. Listen again on the PODCAST

We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)    

David Interview BTRDavid Grant was diagnosed with a glioblastoma multiforme grade IV brain tumour in August 2005. He was working as a Senior Project Manager for the Royal Bank of Scotland (RBS) and married with a two-year-old daughter at the time. David was told he could have just 12 months to live. Fast forward to today: David hasn’t received cancer medication since 2006 and is now watching his daughter growing up.

Listen again to our interview with cancer survivor David Grant – http://t.co/SoBKtRyJHE

A google search of ‘David Grant, Miracle man’ gets two articles, an article by the local paper, it was the reporter that used the term “death penalty” and a longer piece penned by myself.

The Third edition of David’s Treatment log “Surviving and Thriving My encounter with cancer is available at www.lulu.com. It will be available soon as a free download in the meantime, Brain Tumour  Support has the PDF as a free download. Go to www.braintumoursupport.co.uk/your-story.html tab down to the photo of me and click on “Surviving and Thriving” and the PDF link is a couple of flicks down the screen next to a photo of the book.

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Charity of the Month – Brain Tumour Research

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This week on Croydon Radiowe had an interview with Hugh Adams who is the Manager Campaign of the charity Brain Tumour Research. We also looked at Steps to Minimize Drama in Your Life. Listen again on the PODCAST We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

 

Hugh Adams who is the Manager Campaign of the charity Brain Tumour Research

Hugh Adams“If you are under 40 you are more likely to die from a brain tumour than any other form of cancer yet brain tumour research receives only 70p of every £100 of the national cancer research spend.

I’m passionate about improving the outcomes for those diagnosed with a brain tumour and this will only be achieved through increased funding into research.

Specialties: Dedicated and results orientated I am a creative problem solver with excellent communication, negotiation and interpersonal skills. I employ a can-do attitude but am clear on the importance of process. I enjoy being part of a dynamic team to which I bring a professional maturity and thrive in highly pressurised and challenging working environments”.

The Brain Tumour Research Team: Hugh Adams, Crispin Zeeman, Sue Farrington-Smith, Ian Watson, Liz Fussey, Kieth Dale, Sarah Day, Glyn Lewis, Jo Trezise and Sharon Stevens

Brain Tumour ResearchWear A Hat Day was marked by all attendees at an event in Westminster on 12th March, at which we launched our latest statistics report illustrating the chronic lack of funding for brain tumour research.

The event was attended by 19 MPs – unprecedented for an event focussed on funding for brain tumours – many constituents and supporters attended, as well as various representatives from our fabulous family of member Charities and Fundraising Groups. Here are some of the photos from the event.

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

 There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Aunty M’s Birthday Celebration

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This week on Croydon Radio we had Aunty M’s Birthday Celebration. If you missed the show, here is the PODCAST

I was talking about Aunty M Brain Tumours Charity of the Month Hammer Out and mentioned #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

Brain Tumour Support, Claire BullimoreI asked people on the Facebook page and Twitter Page:What are your birthday stories or things you have done to celebrate yours or others?

Here is what they said:

Panda -I would love to go to Austria to see where the sound of music was made

Sandra - The last two years we’ve timed our main holiday to be away on my husband’s birthday and we’re doing the same again this year. Think I might need to take a turn soon!

Chris – beer and women

Julie – I’m off to Spain for my 50th in august, it’s a birthday I never thought I’d see so I’m really looking forward to it

Melinda – Gone to Rome for a long weekend x

Susan – I like spending my birthday with my family, even if it’s at home playing UNO.

New Hammer Out to Brain Tumour Support

 

Also things talked about on the show:

 

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..

 

Brain Tumour Thursday Radio – Barry Runz Flynn “Living with Brain Cancer”

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Last week we interviewed our Charity of the Month Hammer Out.  If you missed this listen again on the podcast Part 1 and Part 2

This week we looked at the #BrainTumorThursday TWEETS. We talked about why crying is a good thing.

Interview with Barry Runz Flynn  

Barry was diagnosed in August 2011 with a Glioblastoma (GBM). He shares his story with us to give an understanding of what it is like living with this terrible disease.

Here is the interview on the PODCAST

 

Other subject we talked about was:

 So why the crying guilt? By Sara Courter

  • Crying is cathartic
  • Crying is natural
  • Crying allows us to be in touch with our emotions on a deeper level
  • Crying is a physical manifestation of our internal emotions, of our thoughts

Others news:

New support group in Kent called East Kent Brain Tumour Support Group

Brain Tumour support group welcomes anyone affected by this condition. We meet on the third Wednesday of every month in a relaxed and informal environment www.ekbtsg.co.uk

Brain Tumour Support, Claire Bullimore

Go to the link to listen again: – http://goo.gl/AyPyPX

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up as an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below

 

Brain Tumour Thursday Radio – Lord Saatchi’s Medical Innovation Bill

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This week on Croydon Radio we talked all about Lord Saatchi’s Medical Innovation Bill. Helping doctors innovate new treatments and cures for cancer. If you missed us, listen again on the PODCAST

The Saatchi BillThe Saatchi Bill will help doctors innovate, advance medical science and find new and better treatments and cures for diseases and conditions.

Mission: To ensure the Medical Innovation Bill is passed helping to save lives by supporting doctors who want to innovate and find new ways of treating disease.

Description: Lord Saatchi’s Medical Innovation Bill (the Saatchi Bill) will help doctors innovate new treatments and cures for cancer and other diseases.

The Medical Innovation Bill will save lives by supporting doctors who want to innovate and find new ways of treating disease.

Doctors, patients and judges will have much greater clarity as to what is negligent and dangerous practice by clinicians and what is careful and sensible innovation.

It will free your doctor to consider new treatments and ideas. But, and more importantly, it will allow the patient to demand innovative treatment.

Once passed, a patient, armed with the legislation, will be able to say to his or her doctor: ‘Are you trying everything? Can you do anything differently?’ The doctor will no longer need to say he or she cannot risk trying anything new.

I was invited to the Medical Innovation Bill – House of Lords consultation launch last week, please watch the you tube clip and find out all about what the Saatchi Bill is.

Read more:

Read all about the consultation on our Telegraph page:

Telegraph.co.uk/SaatchiBill

The Telegraph: The fear of bring sued is running modern medicine:

http://www.telegraph.co.uk/health/9733286/The-fear-of-being-sued-is-ruining-modern-medicine.html

The Telegraph: Lord Saatchi and why he started his campaign

http://www.telegraph.co.uk/health/10024231/I-was-a-desperate-lover-trying-to-save-his-love.html

Please tweet using #SaatchiBill

Follow us on @SaatchiBill

Find us on Facebook: https://www.facebook.com/SaatchiBill

Find us on G+: http://bit.ly/1dSCqPd

Website: http://saatchibill.tumblr.com/

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Making a Difference

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On last week’s Croydon Radio, we looked at articles in the newspapers at the moment including the Brain Tumour SupportSaatchi Bill: Medical Innovation Bill – find out more at  www.saatchibill.tumblr.com/

To listen again click here PODCAST 

This week we looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

This week we had two great interviews which you can listen to on the PODCAST HERE.

Interview with Sam Carson:

First we spoke with Sam Carson who was diagnosed with a Astrocytoma Cerebellar at the age of 4. He shared his experience as a child and as an adult now (age 36).

I was so young, I don’t know what I was like beforehand! I’ve grown up with my problems and that’s probably the best way, if I’d had it later in life I’d remember what I was like beforehand and it would be harder to adjust. It was in the back of my brain so my mobility is impaired – there were a number of complications with the tumour extraction, and I had a stroke (at the age of 4), Meningitis and a Brain Hemorrhage, I’ve also been diagnosed recently with ataxia – Sam Carson

Interview with James Walsh – Policy and Campaigns Manager from Headsmart

HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children  and young people. Their website is intended for the public and for health professionals, to help us all work together to improve diagnosis of childhood brain tumours in the UK.

Discussing the Brain Tumour Awareness Month in March where they are holding a Bandanas for Brain Tumours Day! Sign up here to hold a Bandanas for Brain Tumours Day<http://www.thebraintumourcharity.org/bandanas> and we’ll get your special fundraising pack straight in the post! #BandanaDay

“Together we can get the whole country on our side in the fight against brain tumours”.

Also talking about: Getting symptoms cards into schools across the country through local councils and MPs. Getting symptoms cards into GP surgeries across the country. Attending and exhibiting at the key conferences attended by healthcare professionals. Reaching healthcare professionals directly through our Clinical Champions. Securing national media coverage

http://www.facebook.com/thebraintumourcharity

http://www.twitter.com/braintumourorg

http://www.headsmart.org.uk/>

https://mydonate.bt.com/charities/thebraintumourcharity

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..