Brain Tumour Thursday Radio – Interviewing BTRS

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Over the month of September on Croydon Radio, we had a number of inspirational interviews. As always we kept our eyes on the TWEETS for #BrainTumorThursday also and raising awareness of brain tumours. Listen again to the interviews below.

Aunty M Brain Tumours Charity of the Month was BTRS. Their vision is clear and simple – “we want to cure a devastating disease that affects so many people.  Whist we are waiting for the cure, we will provide the best patient and family support network we can”.

BTRS set its objectives as follows:

  • To raise funds to support specific and dedicated research projects into the treatment and cure of child and adult brain tumours, and to ensure that all research is written up for publication and communicated with other charities and research organisations.
  • To provide grants or financial assistance to brain tumour patients and their carers.
  • To provide equipment and apparatus to hospital wards, patients or research centres.

Interviews with the charity members

Thu 04 September – Interview with Charity Manager, Rachel Wilson about the origins of the charity and what their plans are for the future. Listen again on the PODCAST

Thu 11 September – Interview with Sam Wilson the BTRS Patient Support Co-ordinator. She talked about her personal experiences from brain tumours and what her role intails. PODCAST

Thu 18 September – Interview with Karl Martin and hearing about his brain tumour story. It is very heart warming and honest.  PODCAST

Thu 25 September – Interview with Sorrell Coulson who is the events and fundraising manager from BTRS. Sorrell talked about all the upcoming events this year and how people can take part. PODCAST

Contact:

BTRS Office,
Suite 21,
The Tannery,
Kirkstall Road,
Leeds,
LS3 1HS

Rachel Wilson
Charity Manager.
Email: rachel@btrs.org.uk

Sorrell Coulson
Fundraising and Events Manager
Email: sorrell@btrs.org.uk

Sam Wilson
Patient Support Co-ordinator
Email: sam@btrs.org.uk 

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below.

Brain Tumour Thursday Radio – The National Brain Appeal

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Over the month of July on Croydon Radio, we had a number of inspirational interviews. As always we kept our eyes on the TWEETS for #BrainTumorThursday also and raising awareness of brain tumours. Listen again to the interviews below.

Aunty M Brain Tumours Charity of the Month in July was:  The National Brain Appeal and we found out all the things they do and are doing in the future. Listen on the podcast. Also we found out about a new support group in Croydon The Lake Foundation’s African and African-Caribbean Cancer Support Group. Listen again below..

TheresaÔÇôblogpost3rd July 2014 PODCAST: We had an interview with Chris Smith who is fighting brain cancer. He tells us how he deals with the up’s and down’s of this terrible disease and how he will continue to fight in the hope of watching his daughter grow up. http://t.co/urrhMyCbpl44-R-joss-fleming-2-W1200

11th July 2014 PODCAST: We had an interview with Chief Executive Theresa Dauncey from The National Brain Appeal and learnt all about the charity and what they do and why they were set up. http://t.co/gROiOw4Sce

17th July 2014 PODCAST: We had a wonderful and inspirational interview with brain tumour survivor Joss Fleming who raises money for the National Brain Appeal after they saved her life from a brain tumour. Since her life saving surgery with the National Hospital Joss climbed 5985m up 44-R-joss-fleming-1-W1200Kilimanjaro in June 2012 and raised an amazing £3,800 – http://goo.gl/WcVwRa

image24th July 2014 PODCAST: In July we also had an inspiring interview with a much needed support network set up by Abi Begho. Abi set The Lake Foundation’s African and African-Caribbean Cancer Support Group talking about their aims to provide anyone touched by cancer with the support and information that they need to cope with the effects of this disease. Find out more about them at http://www.thelakefoundation.com/ – here the interview here http://goo.gl/VjDdxv

31st July 2014 PODCAST: http://t.co/aZy9snF2km we talked about stressful times and you can find the articles we read out here http://www.mind.org.uk/information-support/tips-for-everyday-living/stress-guide/#.U99aiPldWSo:

More about the The National Brain Appeal – is the charity dedicated to raising much needed funds for The National Hospital for Neurology and Neurosurgery in Queen Square London.- http://www.nationalbrainappeal.org/

We had some great interviews with people working for or supporting the The National. The charity is one of the world’s leading centres for the diagnosis, treatment and care of patients with a wide range of neurological and neuromuscular conditions including multiple sclerosis (MS), brain cancer, epilepsy, Parkinson’s disease, stroke, Prion disease, and head injury. Please help us to improve their outcomes.

The National Brain Appeal (formerly known as The National Hospital Development Foundation) is the charity dedicated to raising vital fundindexs for The National Hospital for Neurology and Neurosurgery, Queen Square, London. Since the charity began in 1984 we have raised £40 million for state-of-the-art equipment, major building programmes and research.

One event the National Brain Appeal is holding is a call for artists, designers and illustrators!

As part of their 30th anniversary celebrations we are planning an exciting exhibition called ‘A Letter in Mind’ which will be held at the prestigious central London exhibition space gallery@oxo in October 2014. For more information see: http://www.nationalbrainappeal.org/a-letter-in-mind/

 

You can find out more about this incredible hospital by clicking here.

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below.

Brain Tumour Thursday Radio – Super Josh and his Super Powers

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This month on Croydon Radio  we had a new charity of the month. The Joshua Wilson Brain Tumour Charity: http://www.joshwilson.org.uk/ We also looked at the #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)   Join us every Thursday raising awareness. Every Thursday people from around the world wanting to raise awareness of brain tumours come together on Twitter and tweet brain Tumour facts/statistics and stories all day long in the hope that we reach as many people as possible who might not normally hear anything about brain tumours. All you have to do is put #BrainTumorThursday in your tweets/posts.

Do you know about Super Josh yet and The Joshua Wilson Brain Tumour Charity:http://www.joshwilson.org.uk/?

Super Josh“Joshua Wilson aka SuperJosh was a very happy normal 3 and a half year old when he was diagnosed with his tumour; lifesaving brain surgery left Joshua in a coma for 3 months before he then started his recovery in rehab – the complicated surgery due to the location of the brain stem left him with complex physical needs, epilepsy, scoliosis, joint problems and an acquired brain injury” – Joshua’s Mother

Why Donate to the Charity? Your support and donations will help Josh’s Charity improve the lives of children with brain tumours & post surgery disabilities, through financial solutions for specialist equipment, house adaptations and advice.

Super JoshFind them on Twitter: @JourneyJoshuas or @superjcharity

Contact: SuperJosh Charity, PO Box 648, Bury, BL8 9QF



Listen again on the PODCASTS

5th June 2014 PODCAST: http://t.co/fbFnD28KgV
We were looking at 29 Ways to Come Alive, and Not Just Exist – suggestions and reminders that can help you to stop going through the motions. To disconnect the autopilot and to come alive again. http://www.positivityblog.com/index.php/2014/05/15/come-alive-not-just-exist/

 

12th June 2014 Podcast: http://t.co/eCcNqzJPx1

We talked about Avoiding infection when you have reduced immunity – This information is for people who have reduced immunity because of the effects of cancer or its treatment. It explains how to avoid infection when your immunity is low. – Cancer Research – http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/AvoidingInfection.aspx

19th June 2014 PODCAST: http://t.co/eWjK1RuMKZ
We talked about ‘What Things Make People Smile’. – http://tinybuddha.com/blog/51-things-that-will-make-you-smile/ 51 Things That Will Make You Smile – By Lori Deschene

26th June 2014 Podcast – http://t.co/CQ4FbuSsI6
We are looking at ‘Happiness May Be Just a Tight Squeeze Away: The Link Between Mood and Touch’

How Your Brain Reacts to Touch – “A number of studies show that when people touch you, your brain produces oxytocin,” says Paul Zak, PhD, director of the Center for Neuroeconomics Studies at Claremont Graduate University and a self-proclaimed “hugger”. Oxytocin is that powerful brain chemical associated with bonding and relationships, characteristics that that have earned it nicknames including “the love hormone”, “the trust hormone”, and “the happy hormone” –- http://authenticqi.com/2014/06/why-you-need-a-hug/

 

Find like minded people on my Facebook page and Twitter Page.Claire Bullimore

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio –Words of Wisdom: New Diagnosis

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This Month on Croydon Radio we looked at the #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

We had interviews with Aunty M Brain Tumours charity of the Month Friends Of O.S.C.A.R and we had guest Shona Krelle who told us all about her mobile wig service Prestige Wigs. Shona is a sponsor of Cancer Relief UK and covers Surrey/Hampshire and South East.

We talked about: Arrogance’ of ignoring need for sleep. Find out more here: also http://www.bbc.co.uk/news/health-27286872

also

Words of Wisdom: New Diagnosis: What words of wisdom would you offer to a newly diagnosed patient or family? See more at: http://www.braintumour.ca/3198/words-of-wisdom-new-diagnosis#sthash.kZSdT62K.dpuf

Brain Tumour Support8th May 2014 PODCAST: http://t.co/GikvmZ3Dpy
Talking about the work Friends of O.S.C.A.R are doing and letters families sent about how they feel about the charity and how they help then.

15th May 2014 PODCAST: http://t.co/5S3YuZqb1Q Elton Riches from Friends Of O.S.C.A.R came in the studio and talked about the charity and their plans for the future. They are a wonderful charity that is set up to support families that have children with brain and spinal tumours throughout the country. Find out more about them at http://www.friendsofoscar.org.uk/

The charity runs, only because of the families donations that help the charity do such great work. They support families with children who have or had a brain tumour and give them all support during and after treatment. Brain Tumour Support

22nd May 2014 PODCAST:http://t.co/b5DBlcJx44We had a great interview with Shona Krelle who is the owner and founder of Prestige Wigs: Shona talked about her mobile wig service.. “I am very passionate about my mobile wig service, and go all over the South” – Find Shona on Twitter: @PRESTIGEWIGS or at www.prestigewigs.co.uk

29th May 2014 PODCAST: http://goo.gl/3fUkFM We talked about: what words of wisdom would you offer to a newly diagnosed patient or family?

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Where is Your Money Being Spent?

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This week on Croydon Radiowe had an interview curtsey of our Aunty M Brain Tumours charity of the Month Brain Tumour Research. We spoke to two world-class neuro-oncologists, Professor Geoff Pilkington, lead scientist at our Research Centre of Excellence in the University of Portsmouth and Professor Helen Fillmore, the Principal Research Fellow at the lab.

Listen again on the PODCAST We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

Brain Tumour ResearchCroydon Radio continue their sterling work in promoting us as their charity of the month with a must-listen interview with two world-class neuro-oncologists, Professor Geoff Pilkington, lead scientist at our Research Centre of Excellence in the University of Portsmouth and Professor Helen Fillmore, the Principal Research Fellow at the lab.

We thoroughly recommend a listen if you would like to learn EXACTLY how the funds being raised every day are being used at this Centre.

Having dedicated his entire career to brain tumour research, Geoff is now the President of the British Neuro-oncology Society and a leading international authority in the field. In this comprehensive interview he covers everything you need to know; from his own personal beginnings to the fresh new research beginnings, coming about as a result of our dedication to sustainable funding i.e. our 3 new Centres of Excellence. As a leading US brain tumour specialist, Helen Fillmore also offers her thoughts on why the team works so well together, citing their combined experience and shared passion for moving things forward as key to this.

We are incredibly proud to support Geoff, Helen and their team, and believe that together with our incredible #FightingForce of fundraisers, we can make tangible and consistent progress towards finding a cure.” Brain Tumour Research

 

Listen again on the PODCAST

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Interview with Brain Tumour Cancer Survivor David Grant

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This week on Croydon Radio  we had an interview with David Grant. We talked about the charity Brain Tumour Research. Listen again on the PODCAST

We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)    

David Interview BTRDavid Grant was diagnosed with a glioblastoma multiforme grade IV brain tumour in August 2005. He was working as a Senior Project Manager for the Royal Bank of Scotland (RBS) and married with a two-year-old daughter at the time. David was told he could have just 12 months to live. Fast forward to today: David hasn’t received cancer medication since 2006 and is now watching his daughter growing up.

Listen again to our interview with cancer survivor David Grant – http://t.co/SoBKtRyJHE

A google search of ‘David Grant, Miracle man’ gets two articles, an article by the local paper, it was the reporter that used the term “death penalty” and a longer piece penned by myself.

The Third edition of David’s Treatment log “Surviving and Thriving My encounter with cancer is available at www.lulu.com. It will be available soon as a free download in the meantime, Brain Tumour  Support has the PDF as a free download. Go to www.braintumoursupport.co.uk/your-story.html tab down to the photo of me and click on “Surviving and Thriving” and the PDF link is a couple of flicks down the screen next to a photo of the book.

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.