Brain Tumour Thursday Radio – Charity of the Month – Brain Tumour Research

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This week on Croydon Radiowe had an interview with Hugh Adams who is the Manager Campaign of the charity Brain Tumour Research. We also looked at Steps to Minimize Drama in Your Life. Listen again on the PODCAST We also looked at the #Brain Tumor Thursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

 

Hugh Adams who is the Manager Campaign of the charity Brain Tumour Research

Hugh Adams“If you are under 40 you are more likely to die from a brain tumour than any other form of cancer yet brain tumour research receives only 70p of every £100 of the national cancer research spend.

I’m passionate about improving the outcomes for those diagnosed with a brain tumour and this will only be achieved through increased funding into research.

Specialties: Dedicated and results orientated I am a creative problem solver with excellent communication, negotiation and interpersonal skills. I employ a can-do attitude but am clear on the importance of process. I enjoy being part of a dynamic team to which I bring a professional maturity and thrive in highly pressurised and challenging working environments”.

The Brain Tumour Research Team: Hugh Adams, Crispin Zeeman, Sue Farrington-Smith, Ian Watson, Liz Fussey, Kieth Dale, Sarah Day, Glyn Lewis, Jo Trezise and Sharon Stevens

Brain Tumour ResearchWear A Hat Day was marked by all attendees at an event in Westminster on 12th March, at which we launched our latest statistics report illustrating the chronic lack of funding for brain tumour research.

The event was attended by 19 MPs - unprecedented for an event focussed on funding for brain tumours – many constituents and supporters attended, as well as various representatives from our fabulous family of member Charities and Fundraising Groups. Here are some of the photos from the event.

 

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

 There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Aunty M’s Birthday Celebration

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This week on Croydon Radio we had Aunty M’s Birthday Celebration. If you missed the show, here is the PODCAST

I was talking about Aunty M Brain Tumours Charity of the Month Hammer Out and mentioned #BrainTumorThursday TWEETS  (You can find us on @braintumoraunty and @croydonradio)

Brain Tumour Support, Claire BullimoreI asked people on the Facebook page and Twitter Page:What are your birthday stories or things you have done to celebrate yours or others?

Here is what they said:

Panda -I would love to go to Austria to see where the sound of music was made

Sandra - The last two years we’ve timed our main holiday to be away on my husband’s birthday and we’re doing the same again this year. Think I might need to take a turn soon!

Chris – beer and women

Julie – I’m off to Spain for my 50th in august, it’s a birthday I never thought I’d see so I’m really looking forward to it

Melinda – Gone to Rome for a long weekend x

Susan – I like spending my birthday with my family, even if it’s at home playing UNO.

New Hammer Out to Brain Tumour Support

 

Also things talked about on the show:

 

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..

 

Brain Tumour Thursday Radio – Barry Runz Flynn “Living with Brain Cancer”

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Last week we interviewed our Charity of the Month Hammer Out.  If you missed this listen again on the podcast Part 1 and Part 2

This week we looked at the #BrainTumorThursday TWEETS. We talked about why crying is a good thing.

Interview with Barry Runz Flynn  

Barry was diagnosed in August 2011 with a Glioblastoma (GBM). He shares his story with us to give an understanding of what it is like living with this terrible disease.

Here is the interview on the PODCAST

 

Other subject we talked about was:

 So why the crying guilt? By Sara Courter

  • Crying is cathartic
  • Crying is natural
  • Crying allows us to be in touch with our emotions on a deeper level
  • Crying is a physical manifestation of our internal emotions, of our thoughts

Others news:

New support group in Kent called East Kent Brain Tumour Support Group

Brain Tumour support group welcomes anyone affected by this condition. We meet on the third Wednesday of every month in a relaxed and informal environment www.ekbtsg.co.uk

Brain Tumour Support, Claire Bullimore

Go to the link to listen again: – http://goo.gl/AyPyPX

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up as an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below

 

Brain Tumour Thursday Radio – Lord Saatchi’s Medical Innovation Bill

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This week on Croydon Radio we talked all about Lord Saatchi’s Medical Innovation Bill. Helping doctors innovate new treatments and cures for cancer. If you missed us, listen again on the PODCAST

The Saatchi BillThe Saatchi Bill will help doctors innovate, advance medical science and find new and better treatments and cures for diseases and conditions.

Mission: To ensure the Medical Innovation Bill is passed helping to save lives by supporting doctors who want to innovate and find new ways of treating disease.

Description: Lord Saatchi’s Medical Innovation Bill (the Saatchi Bill) will help doctors innovate new treatments and cures for cancer and other diseases.

The Medical Innovation Bill will save lives by supporting doctors who want to innovate and find new ways of treating disease.

Doctors, patients and judges will have much greater clarity as to what is negligent and dangerous practice by clinicians and what is careful and sensible innovation.

It will free your doctor to consider new treatments and ideas. But, and more importantly, it will allow the patient to demand innovative treatment.

Once passed, a patient, armed with the legislation, will be able to say to his or her doctor: ‘Are you trying everything? Can you do anything differently?’ The doctor will no longer need to say he or she cannot risk trying anything new.

I was invited to the Medical Innovation Bill – House of Lords consultation launch last week, please watch the you tube clip and find out all about what the Saatchi Bill is.

Read more:

Read all about the consultation on our Telegraph page:

Telegraph.co.uk/SaatchiBill

The Telegraph: The fear of bring sued is running modern medicine:

http://www.telegraph.co.uk/health/9733286/The-fear-of-being-sued-is-ruining-modern-medicine.html

The Telegraph: Lord Saatchi and why he started his campaign

http://www.telegraph.co.uk/health/10024231/I-was-a-desperate-lover-trying-to-save-his-love.html

Please tweet using #SaatchiBill

Follow us on @SaatchiBill

Find us on Facebook: https://www.facebook.com/SaatchiBill

Find us on G+: http://bit.ly/1dSCqPd

Website: http://saatchibill.tumblr.com/

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about just leave your comment below.

Brain Tumour Thursday Radio – Making a Difference

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On last week’s Croydon Radio, we looked at articles in the newspapers at the moment including the Brain Tumour SupportSaatchi Bill: Medical Innovation Bill – find out more at  www.saatchibill.tumblr.com/

To listen again click here PODCAST 

This week we looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

This week we had two great interviews which you can listen to on the PODCAST HERE.

Interview with Sam Carson:

First we spoke with Sam Carson who was diagnosed with a Astrocytoma Cerebellar at the age of 4. He shared his experience as a child and as an adult now (age 36).

I was so young, I don’t know what I was like beforehand! I’ve grown up with my problems and that’s probably the best way, if I’d had it later in life I’d remember what I was like beforehand and it would be harder to adjust. It was in the back of my brain so my mobility is impaired – there were a number of complications with the tumour extraction, and I had a stroke (at the age of 4), Meningitis and a Brain Hemorrhage, I’ve also been diagnosed recently with ataxia – Sam Carson

Interview with James Walsh – Policy and Campaigns Manager from Headsmart

HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children  and young people. Their website is intended for the public and for health professionals, to help us all work together to improve diagnosis of childhood brain tumours in the UK.

Discussing the Brain Tumour Awareness Month in March where they are holding a Bandanas for Brain Tumours Day! Sign up here to hold a Bandanas for Brain Tumours Day<http://www.thebraintumourcharity.org/bandanas> and we’ll get your special fundraising pack straight in the post! #BandanaDay

“Together we can get the whole country on our side in the fight against brain tumours”.

Also talking about: Getting symptoms cards into schools across the country through local councils and MPs. Getting symptoms cards into GP surgeries across the country. Attending and exhibiting at the key conferences attended by healthcare professionals. Reaching healthcare professionals directly through our Clinical Champions. Securing national media coverage

http://www.facebook.com/thebraintumourcharity

http://www.twitter.com/braintumourorg

http://www.headsmart.org.uk/>

https://mydonate.bt.com/charities/thebraintumourcharity

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..

Brain Tumour Thursday Radio – What is going on?

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On last week’s Croydon Radio,  we talked about who inspires you right now? To listen again click here PODCAST

This week we looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

Saachi BillThis week we looked at articles in the newspapers at the moment including…..

The Saatchi Bill: Medical Innovation Bill – House of Lords consultation launch

Please tweet using #SaatchiBill  @SaatchiBill  ——- Website:  www.saatchibill.tumblr.com/

Aunty M Brain Tumours Charity of the month: Headsmart

HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children and young people. Their website is intended for the public and for health professionals, to help us all work together to improve diagnosis of childhood brain tumours in the UK.

HeadSmart – www.headsmart.org.uk

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..

Brain Tumour Thursday Radio – Who inspires you right now?

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On last week’s Croydon Radio, we talked about how the weather can cause health problems. We also had an interview with Will Jones from Brainstrust, to listen again click here PODCAST

This week we looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

We also have our new Aunty M Brain Tumours Charity of the Month:  Headsmart

 

This week we asked people Who inspires you right now?

Here is the feedback we had:

  • I thought about this I think it has to be kids that endure brain tumours and the experience of it all
  • The man that reached out to me when I was about to have radiotherapy. It didn’t matter that I only had a meningioma and he had a GBM. Philip helped me through that and then I tried to do the same for someone else. Sadly, they both lost their battles but neither will ever be forgotten.
  • My son by battling his Brain Tumour  but always smiling! Struggling with issues but still being loving!! My boy in a million
  • Person who inspires me is my friend, he has been with me on good and bad days
  • My mum, family and friends inspire me to keep positive and beat this crappy disease.
  • l am very lucky to have a wonderful husband and son. Also 2 wonderful sister-in-laws and Aunts that are always checking on me. l had surgery l year ago but they didn’t remove all of it and still am on seizure meds, which don’t always make me feel the greatest.
  • The late great Ian Meek, what he did for Brain Tumour Fundraising and awareness was nothing short of amazing, drives me on everyday.  Also my wife and kids for putting up with me at my worst times, they are my rocks on which I lean far too often x
  • A beautiful woman I visited this week in the hospital post surgery. She has been battling lung cancer. For two months she knew something was wrong…just not right. She kept telling doctors that having a migraine for 2 months was worth investigating. She was put in for surgery suddenly had both side frontal lobe tumor. To see her sitting up with her battle stitches and staples like a headband ear to ear, she looked more radiant her eyes shining, skin glowing and she was in great spirits. This one has a great personality and attitude. I was so proud of her. it was my first time seeing real life (not photos) i was and am still feeling so empowered by her story and all those lives she continues to touch. she still has a long way to go. having lost my father to lung cancer and my step mom a year later to same plus brain tumor, I held great fear walking into the hospital. somehow it has been released. I continue to follow my appointments, get my scans and encourage others to not wait.
  • My mum who struggled with emphysema for many years and was finally bedridden .I never heard her complain once she always remained positive and gratefull.

Aunty M Brain Tumours Charity of the Month: February

Headsmart

HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children and young people. This website is intended for the public and for health professionals, to help us all work together to improve diagnosis of childhood brain tumours in the UK.

The HeadSmart campaign is run by a partnership between the Children’s Brain Tumour Research Centre (CBTRC) at the University of Nottingham, the Royal College of Paediatrics and Child Health (RCPCH) and The Brain Tumour Charity (formerly Samantha Dickson Brain Tumour Trust), and has been funded by The Health Foundation and The Brain Tumour Charity. These diverse organisations have joined forces to tackle the issue of brain tumour awareness in order to speed up diagnosis times.

HeadSmart www.headsmart.org.uk

Facebook http://www.facebook.com/thebraintumourcharity

Twitter http://www.twitter.com/braintumourorg

HeadSmart http://www.headsmart.org.uk/

Reference:

Do you want to be healthy? Then hold that cup of coffee and replace that with a glass of lemon water first thing in the morning. Why? Read this article to find out. by Justine R

BRITISH actor Martin Kemp has opened up about the day he discovered he had two brain tumours, and how his wife of 25 years got him through it.

 Kelli Smith Appeal  @Kellisappeal

Raising money for Life Saving Cancer Treatment for 5 year old Kelli


If you missed us listen again on the PODCAST

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below..

Brain Tumour Thursday Radio – Encourage Yourself

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On last week’s Croydon Radio, we talked about how the weather can  Brain Tumour Supportcause health problems. We also had an interview with Will Jones from Brainstrust, who are the Aunty M Brain Tumours Charity of the Month. To listen again click here PODCAST

We looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

Brain Tumour Support, Claire Bullimore

For many of you that were listening last week we talked about weather and it’s can affect all kinds of things including scars… What do you do to encourage yourself or others?

Aunty M’s question of the week:

If you are having a bad day or a trying time in your life (eg. a bad diagnosis or money problems) …. What do you do to encourage yourself or others?

  • I remind myself how blessed I am. I am alive. God will bring me through anything & everything!! I also repeat the Serenity prayer and Footprints prayer.
  • To put it in God’s hands I am living proof miracles do happen I am a 2 time brain tumor survivor. When I am having a bad day I tell myself God gave you 2 second chances for a reason he has bigger plans
  • once ive gotten over the news i take control of anything i can , being practical with whatever i can
  • Agree with Katrina, it’s up to us to take what control we can whether that’s working out a new, reduced, budget or putting on some make-up and a brave face when we need to. It also helps if you have good friends or a private group, like this one, where you can offload and get some support and advice for when the brave face won’t stay put xx
  • I agree with everything that has already been said. Taking control of what you can helps and counting the blessings you have is important. And sometimes getting a hug is the best medicine available. Good luck on Thursday!
  • Talking and sharing helps lighten the load and deal with emotions , during counselling i learn t that worrying solves nothing i can only deal with the facts as they happen not the what ifs……..
  • My sense of humour helps me. I’m always trying to make light of the situation such as choosing carefully the music I take in to have played during my MRI. Last time there was a track with the line “now its time to look inside your skull”. Next time I’m thinking of POTUSOA “Lump” which goes “She’s Lump, she’s Lump, she’s Lump, She’s in my head”. Love making the MRI guys laugh too

Aunty M’s News:

Aunty M Brain Tumour Charity of the Month – January 2014

Join Brainstrust on Monday 24 February to Sunday 2 March 2014

TEAFEST activities and tips include:
Tea parties at home and work, doing the office tea round for a day,
competition for the most raised, tea drinking competitions, tea cosy hats,
merchandise, scone and cake baking.
Join the conversation, and share what you’re up to with #TEAFEST
Share the posters, and collect sponsorship for your activities

Run the Reading Half Marathon for brainstrust

Only eight month after major brain surgery. Frances is running the Reading Half Marathon to give others hope.

brainstrustHeadLogo200-310x310I’m a lucky girl. I am running to give others hope. I want to show people that although having a brain tumour is scary, you need to be brave. That’s why I’ve joined team brainstrust

brainstrust helps brain tumour patients and their families to take control of their situation.

Run the Reading Half Marathon with Fran

Reading Half Marathon 2014
Date: 2nd March 2014
Start Time: 10:00 am
Registration Deadline: 7th February 2014

References:

Reasons To Never Give Up – http://gustavovallejo.net/22-reasons-why-you-should-never-give-up/

How Do You Motivate Yourself: With Love or Fear?  By Laura Erdman-Luntz

Things Not To Do When You’re Sleep Deprived – http://www.huffingtonpost.com/2014/01/24/sleep-deprived-tired-sleep_n_4639438.html

What YOUR laugh says about YOU – Are you a giggler, a gulper or a wheezer?  By Deborah Arthurs – Read more: http://www.dailymail.co.uk/femail/article-2320740/Are-giggler-gulper-wheezer–What-laugh-says-you.html#ixzz2rj6zKxcO

Find like minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others just leave your comment below..

Brain Tumour Thursday Radio – Why do your scars ache when the weather is dull?

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Brain Tumour SupportOn last week’s Croydon Radio, we talked about feeling guilty that you may not be the same person as you were before? To listen again click here PODCAST

This week we talked about how the weather can cause health problems. We also had an interview with Will Jones from Brainstrust, who are the Aunty M Brain Tumours Charity of the Month.

We looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

Did you know cloudy skies set your scars tingling?

‘Winter thickens the blood’, is just one of the many sayings about the weather that most of us would dismiss as old wives’ tales. In fact, scientists and medics are coming round to the idea that the weather really can have an effect on our physical and mental health” -  By Angela Epstein

I found a wonderful website all about Barometric Pressure Headaches. Barometric pressure (air or atmospheric pressure) measurements coincide with particular weather conditions and altitude (elevation), therefore a Barometric Pressure Headache is commonly referred to as ‘weather headache’ or ‘altitude headache’ and the people who experience them are said to be ‘weather sensitive’ or ‘altitude sensitive’ individuals. To hear more about this go to the PODCAST:

BrainstrustBRAINSTRUST – Aunty M Brain Tumours Charity of the Month – January 2014

Listen to our interview with Will Jones – Talking about Brainstrust:

Upcoming Event: TEAFEST

Tea parties at home and/or work, doing the office tea round for a day, competition for the most funds raised, tea drinking competitions, tea cosy hats, merchandise: Brainstrust mugs, scone and cake baking. Join the conversation, and share what you’re up to with #TEAFEST. Share the posters, and collect sponsorship for your activities: Join in with Brainstrust on Monday 24 February to Sunday 2 March 2014

Contact Details: http://brainstrust.org.uk

Find like-minded people on my Facebook page and Twitter Page.

Aunty M Brain Tumours was set up to have an online support network.

I have tried to give people a place to find information. Not in the medical sense but in a way to help and motivate people.

There will be more places to visit as I find them… If you have any places to tell others about, just leave your comment below..

Brain Tumour Thursday Radio – Are you the same person you were before your brain tumour arrived?

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On last week’s Croydon Radio, we talked about long-term fatigue and how fatigue can be hard for many people long after treatment.  To listen again click here PODCAST

This week we talked about “Are you the same person you were before your brain tumour arrived”. We also interviewed Helen Bulbeck from  Brainstrust which is our Charity of the  month.

We looked at #BrainTumorThursday TWEETS. You can find me on @braintumoraunty or you can find @croydonradio to see what other shows are up to. If you missed us listen again on the PODCAST

This week I talked about feeling guilty that you may not be the same person as you were before?

I asked people on the Facebook and Twitter Pages how they felt:

“YYes i feel this guilt when i m alone . But my family and friends are very supportive”

“Yes i didn’t know as didn’t remember, my mum told me . haven’t a clue what i was like before, i just remember i was happier before, as now everything is difficult and like climbing a mountain everyday”

“I feel awful…..sometimes I just don’t understand why my family don’t understand me and why I do certain things etc I feel sad and upset at the moment about something that I recently did without knowing I was doing the ‘wrong thing’. I thought I was doing the right thing……. I hate having this nasty horrible troublesome tumour in my brain…….. it causes nothing but upset and heartache”

Never will be the same person. How can you be when you have had a large portion of your brain removed? My residuals are so minor compared to others, but they are there. Noises bother me, especially if there is too much auditory overload. I seem to go from nice mom to whoa in a flash sometimes. I’m tired alot… the list goes on and on. But when you compare it with not being here, or not having all my faculties it seems minor, so then the guilt sets in. But I’m also tired of being dizzy, of being tired, and feeling these other symptoms. You get by day by day. There is no other way. Be thankful for what you have and try not to focus on what you have lost or acquired that is negative from this disease.”

“As the parent of a survivor, I know my daughter and myself have been changed. Her personality is mainly the same as before surgery, but does have minor learning deficits now. She also gets frustrated more easily than before. Honestly, I get more frustrated easily too”.

“Yes, I feel very guilty that I can’t be the mom I was before and that it puts so much stress on my families shoulders”

“I initially felt guilty that I am still alive when others do not make it, I now understand this ‘survivors guilt’ is not uncommon. Now I feel guilty when I shout and lose my temper, I used to be so calm!”

“I am just so tired all of the time. I have gone from working full time since leaving school to not working at all which frustrates the hell out of me ! I have become numb to a lot of emotions since I’ve had this . I can’t cry at all I snap at people for the slightest thing and I’m easily offended. I am seeing a psychologist who is great and has helped me a lot”.

“That is the hardest part for me. It changed my life completely and some times, not for the better. I worked hard, did everything right, college, law school, working as a Director for a prof association after 30+ yrs of working. Now, I have been unable to work for the past 5 yrs. I even said to the neurosurgeon after about 3 yrs, I want my life back! His response was that I should get used to life as it was now. Devastating. However, I know there are lots of people with much worse circumstances. I have been trying to do what I can. The largest issue is that I never know when my head is going to cooperate with a planned function – headaches are a daily constant occurrence, sometimes worse, sometimes less. I keep trying to do what I can”.

“I appreciate life much more than I did prior to having a brain tumour. It made me realise that money and having a successful career isn’t everything. I have had four stage 4 tumours (right parietal/occipital PNET) removed over the past 5 years. I’m currently on a second course of radiotherapy in a last ditch attempt to get the tumour under control. The thing I miss the most is not having to worry about cancer.
In March it will be 6 years since my initial diagnosis. There hasn’t been a day since when I haven’t thought about brain cancer.”

Always refer to your GP before taking any action


Other resources talked about are here with links:

Can Your Personality Change after Brain Surgery? Posted by: Juliette Siegfried in Patient Experience

What Causes Personality Changes

The size of the tumor

Type of tumor

Side effects of Neurosurgery

Psychological Trauma

Depression

Disorientation

Aggression


Coping With Personality and Behavioural Changes – Edythe Vassall

After diagnosis and treatment for a brain tumor, a person often may not be the same. Changes in behaviour and thinking occur in the majority of patients at some point during their treatment. The extent of changes can vary considerably from person to person. Changes can be as subtle as mild forgetfulness or as dramatic as deep depression or abusive, violent outbursts. This article will look at the reasons why behavioural and personality changes occur, and what patients and caregivers can do to cope with them.

What causes behavioural and personality changes?

Brain functions

  •  Frontal lobe: Movement, intelligence, reasoning, behaviour, memory, personality, planning, decision making, judgment, initiative, inhibition, mood
  • Temporal lobe: Speech, behaviour, memory, hearing, vision, emotions
  • Pituitary gland: Hormones, growth, fertility
  • Parietal lobe: Intelligence, reasoning, telling right from left, language, sensation, reading
  • Occipital lobe: Vision
  • Cerebellum: Balance, coordination, fine muscle control
  • Brain stem: Breathing, blood pressure, heartbeat, swallowing

Treatment side effects

Side effects of medications

Psychological trauma

Identify and manage the changes

Complications of memory loss

Dealing with depression and fatigue

Confusion and disorientation

Aggressive or combative behaviour

Using teamwork to cope

This article was reprinted with permission from Search, Issue #57 (Summer 2003). For more information, contact the National Brain Tumor Foundation at 800.934.2873 or visit www.braintumor.org.


Motivational Keynote Speaker, Coach, Author – Jay Platt

What Having a Brain Tumor Has Taught Me

1) Bad things sometime happen to good people. Sure, you might be a positive person. You might help others. You might do a lot of wonderful things. But, none of that will keep you from having to face adversity. It’s just part of life. Remember that and deal with it.

2) That which does not kill you makes you stronger. Maybe not physically, but certainly mentally, emotionally and spiritually. You must be open to the lessons that adversity is trying to teach you though. If you do learn them, you’ll be stronger as a result.

3) It could always be worse. As bad as things may seem at the time, they could always be worse. In my case for instance, if I had gotten a VHL diagnosis fifty years ago, things would have been much different. Or, if I had not been blessed to be born in the United States. Or… well, you get the idea.

4) Your attitude makes a huge difference. While it certainly takes a lot more than just a positive attitude for many things in life, your attitude really does make a big difference when it comes down to your overcoming the difficulties of life or not.

5) Prepare now. Since you don’t know when adversity will strike, it’s important to be preparing yourself now. If not, it would be like getting ready for a hurricane when it is bearing down on you. It’s too late then. Maybe you can’t predict, but you can prepare.

For more by Jay Platt, click here.

Aunty M Brain Tumour Charity of the Month – January 2014,

Brainstrust: Interview with Helen Bulbeck – Director of services:

It was lovely to have our guest Helen Bulbeck from Brainstrust. Talking about “The way we grow relationships with our community is important”

Helen’s Daughter was diagnosed with a brain tumour in 2004 and after Helen’s own struggle to find support, from the information available at the time, Brainstrust was set up, to really give a voice to the patients. We talked about:

  • How Brainstrust was set up
  • Brainstrust Groups and MeetUps
  • Supporting 1500 families in the UK, at present
  • Online and face to face support
  • Community Page
  • Brainstrust Hub – a database of brain tumour organisations and groups
  • Travel Insurance
  • Going forward for 2014 – Patient guide, first port of call for brain tumour patients.
  • Patient Guide –  for clinicians, nurses, carers
  • Patient voice
  • Research on Fatigue

Join Brainstrust on Monday 24 February to Sunday 2 March 2014

TEAFEST

Activities and tips include:
Tea parties at home and work, doing the office tea round for a day,
competition for the most funds raised, tea drinking competitions, tea cosy hats,
merchandise, scone and cake baking.
Join the conversation, and share what you’re up to with #TEAFEST
Share the posters, and collect sponsorship for your activities

Contact Details:
www.facebook.com/groups/braintumoursupportbrainstrust/
www.facebook.com/brainstrust
www.meetup.com/brainstrust
http://brainstrust.org.uk/forum
https://twitter.com/brainstrust